Learning Disability Mortality Review (LeDeR)

The LeDeR programme led nationally by NHS England NHS Improvement initiative and the aimĀ of the programme is to drive improvement in the quality of health and social care service delivery for people with learning disabilities and to help reduce premature mortality and health inequalities in this population, through mortality case review. These reviews are intended to support health and social care professionals, and policy makers to clarify the contribution of various causes of death to the overall burden of excess premature mortality for people with learning disabilities; identify variation and best practice; and identify key recommendations for improvement.

The North East and Cumbria Learning Disability Network leads, facilitates and supports the North East and North Cumbria regional Learning Disability Mortality Review (LeDeR) steering group.

Steering Group

The steering group is made up of all the Local Area Contacts from across the region (CCG Directors of Nursing) plus representatives from across:

  • Acute Trusts
  • Specialist Trusts
  • Social Care Providers
  • People with learning disabilities and families
  • NHS England NHS Improvement
  • Local Authority Commissioners
  • Child Death Overview Panel
  • CQC
  • Safeguarding leads

The group meet quarterly it is chaired by a Local Area Contact and the aims of the group are to:

  • Guide and implement the LeDeR programme across the region
  • Interpret and analyse data taken from local reviews to identify themes of regional improvement to develop the work programme and share best practice
  • Monitor action plans that are developed
  • Support and implement national guidance and policy in relation to the LeDeR programme
  • Receive regular updates in relation to the LeDeR programme from stakeholders
  • Support and enable the Stop People Dying Too Young Group in their work programme

Stop People Dying Too Young Group

The Stop People Dying Too Young Group are the North East and Cumbria confirm and challenge group in relation to the LeDeR programme. They are integral to the North East and North Cumbria LeDeR Steering Group and their role is to:

  • Confirm and challenge the North East and North Cumbria LeDeR steering group
  • Support the work programme of the North East and North Cumbria LeDeR steering group
  • Develop and progress their own improvement initiatives that improve the lives of people with a learning disability and reduce premature mortality
  • Promote the work of the group and raising awareness of the LeDeR programme

Work Programme

The current work programme is directly linked to the broader tackling health inequalities work programme of the North East and Cumbria Learning Disability Network. The priorities which have been set for 2021/22 are:

  • Pneumonia
  • Aspiration pneumonia
  • Cancer
  • Wider health promotion
  • End of life
  • Flagging
  • Sepsis
  • Constipation
  • Epilepsy
  • Mental Capacity Act
  • AAA Screening Programme
  • Dementia
  • Oral care
  • NHS 111 and Urgent Care