Learning from lives and deaths of people with a learning disability and autistic people (LeDeR)

LeDeR is a service improvement programme to improve care, reduce health inequalities and prevent premature mortality of people with learning disability and autistic people by reviewing information about the health and social care support people received. It does this by:

Delivering local service improvement, learning from LeDeR reviews about good quality care and areas requiring improvement.

Driving local service improvements, based on themes emerging from LeDeR reviews at a regional and national level.

Influencing national and local service improvements and commissioning that respond to themes commonly arising from analysis of LeDeR reviews.

Children with learning disability aged 4-17 years will have a child death review.

People with a learning disability aged 18 or over will have a LeDeR review.

People with a clinical diagnosis of autism aged 18 or over will have a LeDeR review.

ICSs are responsible for making sure LeDeR reviews are completed about health and social care received by people with learning disability and autistic people.

This enables the ICS to identify good practice and what has worked well, as well as improvements in the provision of care could be made.

In North East North Cumbria (NENC) significant issues are identified and addressed at a more systematic level across our ICS. Individual places may identify additional learning & improvement opportunities unique to that service or place.

A LeDeR review is not a mortality review. It is not just about the last episode of care before the person’s death. It looks at key episodes of health and social care that may have been relevant to their overall health outcomes.