Learning from lives and deaths of people with a learning disability and autistic people (LeDeR)

The LeDeR programme is led nationally by NHS England. LeDeR is a service improvement programme for people with a learning disability and autistic people.

LeDeR works to:
*improve care for people with a learning disability and autistic people
*reduce health inequalities for people with a learning disability and autistic people
*prevent people with a learning disability and autistic people from early deaths

LeDeR reviews
A LeDeR review looks at key episodes of health and social care the person received that may have been relevant to their overall health outcomes. We look for areas that need improvement and areas of good practice. We use these examples of good practice to share across the country. This helps reduce inequalities in care for people with a learning disability and autistic people. It reduces the number of people dying sooner than they should.

The North East and Cumbria Learning Disability Network leads, facilitates and supports the North East and North Cumbria ICB LeDeR Governance Group.

Governance Group

The governance group is made up of all the Local Area Contacts from across the region (previously CCG Directors of Nursing) plus representatives from across:

  • Acute Trusts
  • Specialist Trusts
  • Social Care Providers
  • People with learning disability and families
  • NHS England
  • Local Authority Commissioners
  • CQC
  • Safeguarding leads

The group meet face to face every six weeks is chaired by Ann Fox Deputy Chief Nurse for the NENC ICB with the aim of:

  • Guide and implement the LeDeR programme across the region
  • Interpret and analyse data taken from local reviews to identify themes of regional improvement to develop the work programme and share best practice
  • Monitor action plans that are developed
  • Support and implement national guidance and policy in relation to the LeDeR programme
  • Receive regular updates in relation to the LeDeR programme from stakeholders
  • Support and enable the Stop People Dying Too Young Group and Cumbria People First Confirm and Challenge Group